ROUGH DAY TODAY

ShareAndrew had a rougher day today. He had received platelets and had a reaction to them. He had a high fever, headache and vomiting. He was miserable. WHen Martin asked him if his head still hurt he said “I’ll let you know when I want to give an update!” Alrighty then. He was feeling fine this a.m. even with his ANC # at 6.8! He was eating and chatting and doin just fine. Then the platelets happened. We usually do energy work with them as soon as they go up. I always send blessings to the person that donated & … Continue reading

BLUE MUCK GROUP!

ShareLike I said yesterday when his NP, Trish was in Sat. she was very pleased with his numbers. His ANC # was 218. She did say that his numbers are coming down slowly and that is an indicator how he fast he will recover after transplant. Not a bad thing just a slow thing,remember? Soooo Andrew hearing that decided to go to work and Sunday his ANC # was 17!!! He was like: “I’ll show her slow beeeyatch!!” (OK, I added the beeeyatch ) I think if he wants to go to the ICDI in Tampa on Sat. to see … Continue reading

TEMPORARY REPRIEVE!

ShareAndrew surprised me today by greeting me by his door IV pole free!! He can now be off the IV’s for 12 hours At a time!! Woot WOot! He’s only on one bag of fluids and as long as he drinks 32 oz of water a day plus whatever else he drinks, he can stay off the IV for 12 hrs. He was giddy like a little girl! lol Thought he was going to do a cartwheel! I think he woulda tried if the room was bigger! :-) Trish, his NP spotted a sore in the back of his mouth … Continue reading

LIL BUDDAH INDEED!

ShareI can not even believe I forgot to mention this. Upon the nonsense my mother was feeding Andrew, yes, milk this but not your parents for crying out loud!! Andrew said some profound things to her. Certainly not the other way around! He told her “If I could go back in time, I would not change a thing!” I was shocked! I questioned him about that because my mother had a brain injury, or as we like to call it, her brain deadness, a while ago so we have to check up on things w/her. Remember? My niece is constantly … Continue reading

YAY FOR MEDICAID!!

ShareWe finally got approved for medicaid! Wooo Hoooo! And we only had to submit our info a gazillion times!! And when I say we, I mean Andrew is approved. I guess Martin and I are still screwed if we need medical attention. If the hospital wanted to see any money they better have gotten on the ball! Martin and I never worried about it because it is so ridiculous and laughable really. This whole deal will be at the very least $600,000, probably closer to a million dollars! Even a 6 figure income couldn’t afford this! See??? It pays not … Continue reading

PISS+VINEGAR+NANA=MONSTER! LOL

ShareFirst the exciting news! Yea, baby! Not only did we get our room back…we got one of the new beds too!! *happy dance* The room next door became empty and they moved our room mate over!! Can’t stop the happy dance! These new beds change every time you move and are so quiet when you press it to go up or down! SO you know I’m laying in it!! Normally I don’t make myself to comfy on the empty beds but I am in this one!! Wooo Hooooo! I just may sleep now! I have to admit when I came … Continue reading

SOME WHINE W/THAT CHEESE!

ShareToday was yet another peaceful day as far as Andrew goes!! He did need platelets today, he was down to 37,000 so he got those. His ANC is 252 but his hemoglobin is holding and Andrew is feeling great! He is amazing!! He doesn’t complain that he is bored or about any procedure, he is peaceful and happy and if he can be that here? of all places? you can just imagine what he’s like at home! I’ve always known that he was amazing but boy did we get the polarity of just how amazing he really is today!! We … Continue reading

THEY SAY IT’S YOUR BIRTHDAY HB TO U

ShareShame on me for not remembering to tell Martin Happy Birthday at 2 am when I was going to the clown house!! Not only did I not do it then…I didn’t do it at 7am when he came over to do the chore w/me!!!Andrew did it at 3am and he’s the one all medicated!! But you know his family didn’t call either NOR did my mother!! Uh huh mother you missed Martin’s b-day!!! tisk tisk!! I at least remembered and to make up for it I thought about flashing some boobage but don’t want to scar the boy anymore than … Continue reading

DARK CRYSTAL

ShareI don’t have a lot of time tonight because I’ll be going back to the clown house later tonight. Martin is staying for Andrew’s 5:30a.m. chemo shot in the leg. He’s getting his last 3 hr. dose now. Martin does hypnotherapy on Andrew for this shot because it can really sting going in. AND it’s a chemo they have emergency drugs for and wait for 15 mins after they give the chemo. Last time he didn’t feel a thing. SO we go w/what works. Well we found some tools to add to our healing arsenal!! My friend Denise said that … Continue reading

SHOWING THE ORGANS SOME XTRA LOVE!

ShareAndrew did well today. He was more quiet tonight. He said he felt neutral. Not sure what that means but I’ll take. He said he was still awesme. He started this dose of chemo at 11:30am for 3 hours. His last dose is at 11:30pm tonight (Tues) and goes till 2:30am Wed. Then he’s done till transplant. Speaking of transplant….. (yet another great segway! :-) ) I ran into the transplant doc when I came back. Unavoidable. He had great news and well, not as great news I guess. I don’t want to say bad. He said that the donor will … Continue reading