Spinal Tap

ShareToday we got good news about Andrew’s LP, lumbar puncture, spinal tap for any of you newbies to this. It was clear and the Dr came in personally to tell Andrew, she was excited!   So that is a great sign!!! I had Oprah on today, gots to have my dose of Oprah, and the topic was about being happy. I asked ANdrew if he was happy and he still sez YES! So I had to re-evaluate my thinking. It’s easy to be happy when things are going well. It’s when things get tough and still being happy is the real challenge. … Continue reading

HAD TO TELL ANDREW THE NEWS

ShareWe had to tell Andrew that he was not in remission. He was upset. But we told him that we must stay positive and KNOW that he is healed! Like I said the fun just never stops! I put extra stickers on his chemo tonight. Love, healed on one & Gratitude, Healed on another, all with hearts. I got stickers all over his chemo!! Then I held the IV and said “May his body only use what it needs and release the rest with grace and ease.” So it is!! He got sick twice tonight. It seems to bother me … Continue reading

DID NOT GET THE NEWS WE’VE BEEN PRAYING FOR

ShareMartin was in meeting w/dr’s all day today. That’s never a good sign and I was right. I was sleeping till 4p.m. today. We got to the hospital at 9:45a.m. yesterday so I was ready for bed at 9a.m. this morning. That’s why I wasn’t at the hospital today and it was better that I was not. I wouldn’t have taken the news that well by the dr’s.  ANdrew’s white cell count hit 80,000 today from 22,000 yesterday and from 1500 Friday. Sooooo he is NOT in remission. :-( We need this 2nd round of chemo to work so he … Continue reading

BACK TO THE HOSPITAL WE GO! BAAA WAAA

ShareWe’re getting ready to go back to the hospital tomorrow. :-( We’ve had such a great stay at home!! I wish this was all behind us already!! Tomorrow he is scheduled for surgery to have his medi port put in his chest then a ct scan, start chemo and God knows what else done. Andrew has really enjoyed being left alone and doing things on his own like going potty & NOT having to measure it :-) and getting his own drinks. No one coming in to take his blood pressure, temperature or take blood every few hours. EATING! Yes, … Continue reading

THAT’S JUST HOW WE ROLL PEOPLE!

ShareWith being home there’s so much to catch up on, I haven’t been near my computer. But I did want to give you all a quick update before we ALL go out tonight!! We took Andrew up to the clinic yesterday to c how he was doing. He was sick the whole way up. It was so hard on him. He couldn’t even walk in we had to get a wheel chair for him. He was even getting sick when we got in there. He threw up on their floor. Once he was able to lay donw he felt better. … Continue reading

STILL WAITING TO EXHALE

ShareBut first on to the great homecoming!! Andrew called me 10am after my, say oh, 2 hours of sleep! Just couldn’t fall asleep. And here I am again at 4:30am writing! I have no sleep patterns now! :-) He called to let me know he was going to be released in a 1/2 hour!! :-0 Say what?? So much for all the plans I had! Buy the cake, get balloons, decorate, burn CD ect. I run around like a chicken with it’s head cut off trying to get ready. I know I was going to at least take a shower! … Continue reading

WORD ON THE STREET

ShareANDREW IS COMING HOME TODAY!! AUG 15TH MY B-DAY!! Ok, it may be only be for a few days to a week but MY BOY IS COMING HOME!!!!!That’s all I care about!! My baby being home! I’ve been so busy since I found out this afternoon…yesterday afternoon now. I had to clean the clown house room and do laundry there then come home and clean here. SO this won’t be a long blog. Thank God for Lori coming up today/yesterday (my timing is way off) and helping me there. Hmmmm I wonder if she’ll do my hair later on today. … Continue reading

OUT OF THE MOUTHS OF BABES!

Share(((((((((HUGS)))))))) for everyone!! It’s hard for me to get eveyone’s name in. I love and appreciate each and everyone of you!! YOU ROCK!Now on to the progress!!! Now on to the progress!!!Here’s a cool story for you. My friend/hairdresser’s son Cameron, who will be 4 next month, sez yesterday outta the blue, while outside in the garden, “Mommy, Andrew is healed!” Lori asks him, “How do you know?” Cam sez “Because God told me. ANd the Aliens and the fairies   said too, but mostly God.” Our friend Jeremy is celestial and Martin being Martin, Cam is right on the … Continue reading

OH POO! WE’VE GOT A ROUND 2!

ShareOk, Here’s the great news!! ANdrew had a 4 hour furlough today!! SO we went to the clown house and showed him ALL around it. We sat in the rec room and out on the back patio that is gorgeous. Our room is on the 3rd floor. He took ALL the steps no probs! He loved it! Then we sat in the livingroom for a bit. He loved the house’s energy and was taking it in. WE sat and chatted for awhile. He loved being outside. The neighborhood is gorgeous and you can smell nature. Then we made our way … Continue reading

SLUMBER PARTY! WOO HOO!

ShareTonight has been another slumber party for me an The Muck! That’s Andrew’s nickname, it’s an Irish term of endearment for best mate. Mucker is the full term. We’ve called him that since he was a baby. So anyway, Muck past out after his journey to the cafeteria & slept for a few hours. Then he awoke and we chatted as I lay,(or is it lie, not sure I can NEVER rememeber how that works) beside him. He actually had some of a cookie that Leah made for him, gatoraide, and some more rice milk. He downloaded some more John Lennon songs onto his … Continue reading