NO REST FOR THE WICKED..

ShareThat would be me peeps! I’m a posting fool tonight! I have the night shift so I’m up all night. I do that so I can bolt b 4 the docs show up. I’m not good w/the docs. You’d think I’d be resting while Andrew is wouldn’t ya?? But noooooo I don’t. Once I did fall asleep and it only made it harder for me trying to wake up and help him. My eyes were burning, I couldn’t see right, and I was cranky. That’s not good. 2 cranky people??? yea, definitely not good. Awwwww he just woke up to … Continue reading

Ahhhhh Geez!

Share The fun just never stops! Just found out his weight and I’m not happy. He was 68kg when he arrived and now he’s 53kg. Dunno what that is in pounds but I know it ain’t good. He was around 138 lbs when we got here. They may want to do a feeding tube soon if he keeps dropping weight. *sigh* Let’s hold the intention that this isn’t neccessary. He has a CT tomorrow @ noon for his sinuses, lungs, & Goddess knows what else. So of course he can’t eat anything after 8a.m. until after the scan. Vicious circles we … Continue reading

LET’S DO THIS!

ShareThose are Andrews words this a.m. when things got tough. Every time he had to cough up something, that’s what he’d say. “Let’s Do this!” We had a rough few hours early this a.m. (Sunday) with his coughin, gaggin and breathing labored. I had to call Martin at 6 a.m. to come over and . Martin does hypnotherapy w/him and that helps. He had a fever, his BP was high, and breathing labored. He cried a few times from the pain in his throat when he coughed. Martin handles that stuff better than me. The mom gene kicks in high … Continue reading

ANDREW’S SONG, LET THE WELL BEING FLOW!

ShareOne of my fairly new myspace friends wrote and recorded a beautiful song for Andrew. SHe reads the blog here and was inspired to write. I’ve never met her & she lives here in Tampa. Her name is Leah. I was touched that she would do his for him. She’s only been a myspace friend for maybe a month if that. She heard about me from her friend who I met on myspace that lives in Sarasota. YOu can hear the song at: www.myspace.com/ellceeleah She put his pic up with it. Enjoy! He’s still doing good. This muocusitus is such … Continue reading

IT’S A BEAUTIFUL DAY!

ShareToday was a pretty darn good day. Everyday we spend w/Andrew is apretty good darn day! Great infact! He had a restful night. He had some dilonton last night which is another drug of choice of his. He hasn’t had any dilonton today ot tonight. He said he felt hung over this a.m…..not that he’s been hung over b 4. But he had his LP today so he was sedated for that and groggy for a few hours later. He is not fussed about LP’s anymore. WHen he found out they were doin it in his room he said “Sweet!”   The only thing he doesn’t like … Continue reading

Magnitude of Gratitude!

ShareAndrew is back to drinking soy milk, 48 oz. so far today!! And actually had a few small pieces of banana as well today!!! He is wanting to branch out more wanting some V8 Splash and some fruit juice. His blood pressure was high yesterday and last night, so he’s been on meds for that but it didn’t come down last night. I think because of the stress and frustration of his sore throat. He said if it weren’t for that he’d feel great! He has ulcerations in his throat from the chemo. SO you can only imagine how painful that must … Continue reading

PEACE AT LAST! PEACE AT LAST! THANK GOD WE HAD PEACE AT LAST!!

ShareAndrew has had a rather restful night!! Finally sleeping w/ the occational talking in his sleep. He’s threaten to kick the s**t outta someone. Told someone else to keep up & other fun stuff. He’s been sleeping for quite awhile only waking for a few moments. He doesn’t even remember my sister giving him an hour foot massage! Martin and I finally got to spend a little time together. We had 2 dates in the hospital cafeteria yesterday!! We feel like teenagers again! Once we went was when Adele and her teacher, Betsy, tag teamed Andrew with energy work. We … Continue reading

LIFE IS A GAME I NEVER WANT TO STOP PLAYING!

ShareConnie Here:  Those were Andrew’s words the night after coming off a 5 day sedation and intubation, upon other profound and insightful things he shared with us. I am in constant awe of this child. Even today when I got here  & he was coughing and gagging because of the mucousitus he still said he was doin pretty good. He had a beathing treatment that actually worked!! Woohoo! FINALLY! Something that worked for a change w/o major side effects. He’s been resting pretty good altho still talking in his sleep. Not sure when he’s talking in his sleep or really … Continue reading

Another Restless Night

ShareMartin Here: Restless but good. I am keeping vigil tonight. His fever topped at 40.4 (Metric) tonight. Connie has gone back to Sarasota tonight to take care of the mail, the house and her puppy. She also has an appt to have the scrape on the car looked at tomorrow. I am checking Andrews temp every 45 minutes and it is going down again, but it just keeps going up and down. Nobody is sure why this is. It may be something created by the mucocitis, and it may be something due to a bug somewhere in his system that … Continue reading

My side

ShareAndrew had his first day of depression. He did not like it. He said it does not resonate with him. His sore throat is getting to him. The fact it’s too sore to eat anything has taken it’s toll. We discussed it then decided to put on The Secret to help shift the energy. It actually did help. We found he can drink Rice Dream milk w/ no stinging or pain. He may have to drink a gallon of it a day to gain weight but he’s willing to give it a try.  Like Martin said above, he goes for the lung thingy Monday at 4:00p.m. … Continue reading