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Magnitude of Gratitude!

ShareAndrew is back to drinking soy milk, 48 oz. so far today!! And actually had a few small pieces of banana as well today!!! He is wanting to branch out more wanting some V8 Splash and some fruit juice. His blood pressure was high yesterday and last night, so he’s been on meds for that but it didn’t come down last night. I think because of the stress and frustration of his sore throat. He said if it weren’t for that he’d feel great! He has ulcerations in his throat from the chemo. SO you can only imagine how painful that must … Continue reading

PEACE AT LAST! PEACE AT LAST! THANK GOD WE HAD PEACE AT LAST!!

ShareAndrew has had a rather restful night!! Finally sleeping w/ the occational talking in his sleep. He’s threaten to kick the s**t outta someone. Told someone else to keep up & other fun stuff. He’s been sleeping for quite awhile only waking for a few moments. He doesn’t even remember my sister giving him an hour foot massage! Martin and I finally got to spend a little time together. We had 2 dates in the hospital cafeteria yesterday!! We feel like teenagers again! Once we went was when Adele and her teacher, Betsy, tag teamed Andrew with energy work. We … Continue reading

LIFE IS A GAME I NEVER WANT TO STOP PLAYING!

ShareConnie Here:  Those were Andrew’s words the night after coming off a 5 day sedation and intubation, upon other profound and insightful things he shared with us. I am in constant awe of this child. Even today when I got here  & he was coughing and gagging because of the mucousitus he still said he was doin pretty good. He had a beathing treatment that actually worked!! Woohoo! FINALLY! Something that worked for a change w/o major side effects. He’s been resting pretty good altho still talking in his sleep. Not sure when he’s talking in his sleep or really … Continue reading

Another Restless Night

ShareMartin Here: Restless but good. I am keeping vigil tonight. His fever topped at 40.4 (Metric) tonight. Connie has gone back to Sarasota tonight to take care of the mail, the house and her puppy. She also has an appt to have the scrape on the car looked at tomorrow. I am checking Andrews temp every 45 minutes and it is going down again, but it just keeps going up and down. Nobody is sure why this is. It may be something created by the mucocitis, and it may be something due to a bug somewhere in his system that … Continue reading

My side

ShareAndrew had his first day of depression. He did not like it. He said it does not resonate with him. His sore throat is getting to him. The fact it’s too sore to eat anything has taken it’s toll. We discussed it then decided to put on The Secret to help shift the energy. It actually did help. We found he can drink Rice Dream milk w/ no stinging or pain. He may have to drink a gallon of it a day to gain weight but he’s willing to give it a try.  Like Martin said above, he goes for the lung thingy Monday at 4:00p.m. … Continue reading

Down To The Wire

ShareHey Everybody Martin here. We are down to the wire now, I can feel it. I am putting the thoughts into getting home with a perfectly healthy boy. I know the real healing will begin once we get him home. Tomorrow, he has a broncoscopy with wash to determine what it is that is causing the fever thst he has had since he came into the hospital. We are holding the thought that he is a Happy and Healthy Boy. He rested this weekend and had one x-ray tonight. I also feel that his throat is on the mend and … Continue reading

3 AM

ShareWell, it’s 3 a.m. and Andrew is resting pretty good. I have The Fairy of The Woods CD playing. He’s More restful than he has been. His oxygen levels are great right around 97 right now. We had an issue with it earlier today and he was put on oxygen. Today was a bit of a nightmare w/some doctors. Pulmonary doc came in and said he has lung disease. WTF??? AND they want to do yet another procedure and go into his lungs to get a biopsy. Every test has come back neg. R U kidding me?? They want him … Continue reading

The first Entry of My Blog

ShareHi everybody Andrew’s Dad here getting the ball rolling. Everybody else has posted comments to a non-esisting blog, so I willtake some time totidy things up. Andrew is doing well today, and we have him resting this weekend after putting some people in their place and taking our power back as parents. We have decided to let him rest this weekend and try to put back some of the weght that he released. He is such an inspiration to me, and at this point, has handed me a great list of things that are small stuff. I am surprised at … Continue reading

Here We Are…

ShareWell, it looks like it will be me blogging and not Martin or Andrew for awhile. Things are very hectic, always some kind of test going on. Today it is another lumber puncture (LP) where they do a spinal tap and they shoot chemo directly into his spine. It’s his 3rd one. *sigh* He is sedated for it. When they first did it there weren’t as many luekemia cells as they thought. SO that was good. Dunno what it is now. Haven’t heard…which we look at as a good sign. It’s when the docs won’t leave u alone u worry. … Continue reading